Energy - About 80% restored. I no longer nap during the day. I am working full time without any problem. In the past two days, I have walked the equivalent of 10 miles, and in the last five days, I have walked 21 miles. That's about equal to my pre-treatment activity. Most mornings, I am greeting the day with a two mile walk, (and often some chi gong exercises) and really enjoying it. I am much lighter and my muscular strength is probably half what it was...I'd like to start doing some light weight training soon. Sometimes at night, I feel myself crash when we sit down to watch a TV show...Sometimes, it is almost painful...but I wake up refreshed.
Taste. About 75 % restored. For the most part, I do not taste foods as strongly as I used to. Some foods, particularly sweets, are still a bit unpredictable, and at times, unpleasant. Milk often tastes a bit sour. I ate a few bananas this past week...bananas for some reason taste funny now. I used to love eggs...now, sometimes, I do not like the taste of eggs at all. If a food is spicy, it is difficult to describe how harshly it burns...it is virtually intolerable. I ate a bagel, cream cheese and lox for breakfast today (my traditional Saturday morning breakfast)...it wasn't bad, but it was a lot of work. Eating with minimal saliva is more of a chore and less enjoyable, but I have come a long way back. I just discovered ARBY's sells an apple turnover that tastes just delicious to me with a cup of coffee or tea. I pass an ARBY's on my way home from the office, and I fear I will become addicted to this treat. I am enjoying coffee a lot. I drink green tea, but tea now always leaves an unpleasant aftertaste. I drink gallons of water, but other than coffee or tea, most other drinks, such as fruit juices, taste weird.
Salivary function. About 25% restored. This is the worst of the lingering aftereffects. I do not know yet whether I will still improve here or just have to learn to live with this. I do have some saliva, but it is not "normal" and I frequently feel like I have to rinse my mouth. Unless I am eating something with sauce on it, or lots of moisture in it, like oranges or melons, I have to drink water to swallow. With meat, chicken, bread, crackers...if I don't have water, the food gets stuck in my throat. When I am outdoors or am doing a lot of talking, my mouth gets really dry really fast if I am not sipping water. Now that the weather is warmer, it's not as bad as it was in the cold.
Neuropathy. Another side effect of chemo that has not gone away. My fingers and toes often tingle. Sometimes my whole right arm is a bit painful. When I wake up in the morning, and am nice and warm, I barely notice it...it seems to get worse as the day goes on. But, it is very manageable, and does not impair walking or grasping or typing, etc. If it gets no worse, it's no real problem, just a bit annoying.
Some days I just feel lethargic and a bit nauseated and just not well. They seem to be isolated...I just go on with the day and invariably the next day I feel better. This is a new reality for me, having come from a place of almost unbelievable continuous health. I hardly knew what it meant to feel "under the weather." I never was an energy superstar, and my normal pace was first or second gear, but now, I am learning to adjust to having these days that just aren't so hot. Today, actually, I have felt as good as I have felt in almost a year. If I could forget about the saliva, I would say today I felt like my old self.
SPACIOUSNESS AND STILLNESS. I have a new longing...well, not new, but more pronounced. It is a longing for stillness and spaciousness. I have difficulty putting this into words...but when I am walking early morning, or practicing meditation, or just sitting quietly without any distractions, I feel myself move into a place of deeper peace and fulfillment, and it's like thirst-quenching is to a thirsty person. Today while I was walking I had this thought...life begins with tremendous spaciousness...then, as the years go by, we fill that space more and more until at some point, there is virtually no space between the barrage of stimulus at all...we just move from one hectic moment to the next hectic moment...then, as we approach old age, infirmity, and ultimately death...we begin to again have some spaciousness, depending on the speed of that process. Well, friends, let me tell you...I am reclaiming some of that back right now. I am certainly not yet old (isn't it something how "old" is a relative term, and moves a little further down the road than we presently are...) and God willing, have some healthy days ahead...and I never want to fill them up to overflowing with noise, activity or mind racing thinking again. NO SIR! Give me quiet walks, quiet times with God, quiet time to contemplate and meditate. SPACIOUSNESS AND STILLNESS....
While the longing for spaciousness and stillness seems to me a generally good and healthy pursuit...wouldn't you know, there is a bit of a dark side to this that harkens back to my past. My mother, who was a generally sunny, cheerful and wonderful woman, briefly entered a state of catatonic depression...she became a statue...and required shock treatment ...electroconvulsive therapy...back in 1964. After a few weeks of brain zapping with electricity, she snapped out of it, and was her cheery self again for about thirty years until a relapse of her depression sometime in the 1990's... This second bout with depression responded well to Lithium which I believe she stayed on for the rest of her life. She died when she was 84, and did not have another episode of depression during the last 8 or so years of her life. Around the same time that my mother had her initial episode of catatonia and depression in the 60's...(I was an adolescent) I began having some milder symptoms myself. No one noticed. NO ONE NOTICED! When I was a freshman in college, at the State University of New York at Albany, I lived in an old dorm that was a spillover dorm (if I remember correctly) from the old teachers college, and was located a few miles away from the campus. They put freshman in this dorm because all the modern campus dorms were full and they had to find another place to stick us. Since it was an old dorm, it was built like an old dorm...long dark hallways, etc. I went through a phase where I would stand as still as a statue in the window sill of a very large window at the end of a very long hall. I would particularly do this after the hall lights were turned out around midnight, and only the exit signs were lit, making for a very dark tunnel like effect. I do not remember how long I would stand this way, and I was often high on a variety of hallucinogens, being in college in New York in the late 60's. I was virtually invisible to people coming back to the dorm late, or getting up to use the bathroom down the hall...I was not noticed because, I think, no one expected to see a person standing absolutely still on the ledge of a large window at the end of the hall. When I was noticed, people would startle, and then say something to the effect of "what the hell are you doing standing on the window sill up there?" I would calmly reply something to the effect of "I am not doing anything" or else, " I am just standing here." Surprisingly, those explanations generally seemed to suffice, given it was the 60's and being weird was generally acceptable. Now... over the course of the last decade...there are times I find myself given to similar moments like this...I drive somewhere, turn off my car, but do not move...I stay completely still for a minute, maybe five.... for no particular reason...I "stop" for a bit of time, and then continue doing what I set out to do. This is quite interesting... to me. I am fully in control, and am... by no means... stuck. I don't do this often, but I have an appreciation of this stillness and this "stopping " that is, perhaps, a bit eccentric. I guess a little bit of eccentricity is OK, even (or especially) for a psychologist. What is odd to me is that I haven't encountered such a phenomena in others. Why always the press to "keep going." Try it...just completely stop...be really, really, really still...just for a minute or two...it wont hurt you, and you may even enjoy it...then resume your activity where you left off. Perhaps this eccentricity has nothing at all to do with my longing for a more meditative and spiritual stillness and quiet... ...perhaps...
While I was nearing the end of radiation treatment, I had such a moment of "stopping" on the radiation table, and I wrote a short, one paragraph post (Sept 28 '09) hinting at it in a bit more descriptive manner...I was, by then, taking narcotics, and not saying anything too concretely. Here is the link to copy and paste in your browser if you care to read it...or you can go to the 2009 posts in the blog archive to the right, and click on September and then the entry that's titled "hold a second absolutely still." I am not sure if this post or that one makes more sense...
http://sblumsblog.blogspot.com/2009/09/checking-in-hold-second-absolutely.html
A slightly different perspective on the same concept.
